Tuesday, February 17, 2009
....went out to play
....on a spider's web one day
....He had such
....He called for another elephant to come
The strange things that rattle through my brain. The above is a song from a kid's game that I used to play with my Brownie troop when I was young. And oddly, that's the song that was going through my head yesterday as my neurologist was doing an ultrasound on my bladder to determine if my incontinence issues are because I'm not able to fully empty my bladder, meaning it's a sphincter issue...or is it simply that I need to strengthen my pelvic floor. We were all happy to learn (sheesh!) that my bladder was empty, therefore, it's probably more a pelvic floor issue. Now all I need to do is find a physical therapist in my area who specializes in pelvic floor rehab. Yeah.
I know, I know....it's all too much information.
Yesterday was my semi-annual neurological exam. When all was said and done, it was obvious to him (as I have known) that there is definite deterioration in many neurological areas. Of course, it probably didn't help that I had worked all night and then Brillo Man and I put Olivia on the bus, took Bentley to the vet to board for the day and drove an hour and 1/2 to Pittsburgh. I was exhausted before I even started! But it was good that my doctor could see me at my worst. Usually he sees me at my best.
After much discussion and many physical and mental tests and tasks, we all came to the same conclusion. That I can no longer go on treating this MS by doing nothing. Which is what I've been doing. Over the years, I've tried many things, but nothing really worked sufficiently enough that I thought it was worth taking any medications. In fact, the side effects from the meds were sometimes worse than the MS. This time, I'm convinced that I need to be proactive.
So....I will soon be starting a daily dose of Copaxone. A sub-cutaneous injection - yahoo. I'll be using an auto-injector...just as soon as I figure out how to use it. All previous shots I gave myself were the old-fashioned, draw-it-up-in-a-syringe-and-stick-yourself kind...and they were intramuscular, which meant I was jabbing the needle an inch or so into my muscle. So a "sub-q" is going to be a piece of cake.
We'll see if it makes a difference. If it does, great. I'm skeptical - as always. Why put something potentially toxic into your system if you can help it? Dr. Heyman (pronounced, High-men) had an answer for every objection I had --and they were good answers. Even Brillo Man agreed that I need to do something and that my neurologist had valid reasons for encouraging me to start the Copaxone injections. And he stated his case well.
So okay...let the drugs begin. And I'll keep trusting that this is the method that the Lord is allowing in order for me to be well.
With God, all things are possible. Even elephants playing on spider webs...
I'll keep you posted.